Job summary
- Main area
- Ehlers-Danlos Syndromes Service
- Grade
- NHS AfC: Band 4
- Contract
- Permanent
- Hours
- Full time - 37.5 hours per week
- Job ref
- 337-NP-8781KS
- Employer
- London North West University Healthcare NHS Trust
- Employer type
- NHS
- Site
- Northwick Park Hospital
- Town
- Harrow
- Salary
- £31,081 - £33,665 PA
- Salary period
- Yearly
- Closing
- 28/05/2025 23:59
Employer heading

EDS Pathway Coordinator
NHS AfC: Band 4
London North West University Healthcare NHS Trust (LNWH) cares for the people of Brent, Ealing, Harrow and beyond.
Our team of more than 8,200 clinical and support staff serve a diverse population of almost one million people.
We run major acute services at:
- Northwick Park Hospital: home to one of the busiest emergency departments (A&E) in the country. The hospital provides a full range of services including the country’s top-rated hyper-acute stroke unit and one of only three hyper-acute rehabilitation units in the UK
- St Mark’s Hospital: an internationally renowned specialist centre for bowel disease
- Ealing Hospital: a busy district general hospital providing a range of clinical services, as well as 24/7 emergency department and urgent care centre, and specialist care at Meadow House Hospice
- Central Middlesex Hospital: our planned care site, hosting a range of surgical and outpatient services and collocated with an urgent care centre.
We are a university teaching NHS trust, in recognition of the important role we play in training clinicians of the future and bringing the benefits of research to the public.
Find out more about our Trust and why you should join us#WeAreLNWH
Find out more about Our HEART values
Find out more about our Trust Staff Benefits
Our vision at London North West University Healthcare NHS Trust is to put “Quality at our HEART”. Find out more about our ambitious strategy
We are clear that our vision can only be achieved by our staff, who are our most valuable asset.
Our vision is driven by our HEART values and behaviours which were developed together with our staff.
- H onesty
- E quity
- A ccountability
- R espect
- T eamwork
These values describe how we interact with each other and our patients and must underpin everything we do to achieve our vision.
LNWUH is a flexible working friendly organisation, we want you to be able to work in a way that is best for us and for our patients, and for you. Please speak to us about how we might be able to accommodate a flexible working arrangement whether that’s job share, part time or another flexible pattern. If it works for the service, we will do our best to make it work for you.
Job overview
An exciting opportunity has arisen for a Pathway Coordinator to join the highly specialised Ehlers-Danlos syndromes service covering the South of England and Wales in contributing to delivering an excellent service for people with, or at-risk of, rare, monogenic EDS types. The post holder will ensure high levels of patient and clinician satisfaction by being an accessible, patient focussed and knowledgeable point of contact. To provide a consistent approach across the Trust, Standard Operating Procedures (SOPs) will describe how the functions of this role will be carried out in each service. The standard job summary is described below:
•To be the key contact for the allocated grouping of clinical staff, services for all patient related and administrative matters.
•To be the key contact for all patients under the allocated service.
•To work within the Clinical Support Team to deliver high quality administrative services to allocated clinical team.
•To monitor patient’s pathway, from referral, escalating issues promptly, in order to ensure compliance with waiting time standards.
•As required, support the coordination of national and local audits by effective data collection.
Main duties of the job
· To support the EDS lead and EDS coordinator to ensure all administrative process are delivered to a high professional standard.
· To register new referrals and upload to Rego. To send out first contact letters or rejection letters.
· To work with the electronic Patient System Cerner and register patients, upload reports and family trees on Phenotips.
· Take responsibility for the efficient and professional handling of all telephone and email queries.
· As required, provide administrative support to the allocated services.
· Under the instruction of the EDS lead/ EDS coordinator, to cancel / reduce clinics as leave is booked. To be responsible for ensuring that clinics are booked to capacity, but appropriately for the number of clinicians.
· To be responsive and to re-prioritise the patients to meet their clinical urgency and to make ad hoc urgent appointment as required.
To be aware of the patients waiting times for allocated services by ensuring that patients are re-booked and seen both within waiting time targets and as necessary for clinical urgency, and to escalate to the EDS lead or EDS coordinator if this is not possible.
Working for our organisation
London North West University Healthcare NHS Trust (LNWH) cares for the people of Brent, Ealing, Harrow and beyond.
Our team of more than 8,200 clinical and support staff serve a diverse population of almost one million people.
We run major acute services at:
• Northwick Park Hospital: home to one of the busiest emergency departments (A&E) in the country. The hospital provides a full range of services including the country’s top-rated hyper-acute stroke unit and one of only three hyper-acute rehabilitation units in the UK
• St Mark’s Hospital: an internationally renowned specialist centre for bowel disease
• Ealing Hospital: a busy district general hospital providing a range of clinical services, as well as 24/7 emergency department and urgent care centre, and specialist care at Meadow House Hospice
• Central Middlesex Hospital: our planned care site, hosting a range of surgical and outpatient services and collocated with an urgent care centre.
We are a university teaching NHS trust, in recognition of the important role we play in training clinicians of the future and bringing the benefits of research to the public.
Detailed job description and main responsibilities
To view the main responsibility, please see the attached the Job Description and Person Specification.
Person specification
Education/ qualifications
Essential criteria
- Educated to A Level/NVQ level 3 or equivalent experience
Desirable criteria
- Medical terminology qualification
Knowledge and experience
Essential criteria
- Previous NHS experience
- Extensive experience of Microsoft Office applications and database software
- Excellent understanding of the RTT waiting times guidance.
Desirable criteria
- Experience of monitoring waiting times data
- Experience of using Cerner
Skills, abilities and attributes
Essential criteria
- High standard of written and verbal communication skills
- Attention to detail
- Ability to work as part of a team and use own initiative
- Sound analytical skills
- High standard of time
- Management skills
- Competent in the use of computer software
- Excellent organisation skills
Applicant requirements
The postholder will have access to vulnerable people in the course of their normal duties and as such this post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service to check for any previous criminal convictions.
Documents to download
Further details / informal visits contact
- Name
- Fleur van Dijk
- Job title
- Lead EDS Service
- Email address
- [email protected]
- Telephone number
- 0208 869 3166
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