Job summary
- Main area
- Neurology
- Grade
- NHS AfC: Band 7
- Contract
- Permanent
- Hours
- Full time - 37.5 hours per week
- Job ref
- 309-UCLH-8406628
- Employer
- University College London Hospitals NHS Foundation Trust
- Employer type
- NHS
- Site
- National Hospital for Neurology & Neurosurgery, UCLH
- Town
- London
- Salary
- £58,133 - £65,261 Per annum inclusive of HCAS
- Salary period
- Yearly
- Closing
- 18/11/2026 23:59
Employer heading
Clinical Nurse Specialist in Neuromuscular Diseases (Peripheral Nerve)
NHS AfC: Band 7
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Job overview
An exciting opportunity has arisen for a Band 7 Peripheral Nerve Clinical Nurse Specialist post within the Centre for Neuromuscular Diseases (CNMD). The post holder will work as a CNS supporting people living with inherited neuropathies. You will be working 37.5 hours per work over 5 days.
Based at the National Hospital for Neurology and Neurosurgery, this post offers the opportunity to work alongside world experts in inherited neuropathies.
This post sits within the neuromuscular nursing team at CNMD, we currently have 5 band 7, and 1 band 8a clinical nurse specialist working to support people living with a range of neuromuscular diseases.
You will also have the opportunity to work alongside wider NHS services such as the National Amyloid Centre and Great Ormond Street Hospital for people transitioning to adult services.
We require somebody who can work both autonomously and as part of a wider team. You must be able to work flexibly to meet the demands of the role and be an excellent communicator.
Main duties of the job
• To see and assess patients living with inherited neuropathies and be able to create and appropriate, patient focused care plan.
You will work closely with the wider multi-disciplinary team to provide outstanding care for patients and carers living with inherited neuropathies.
• You will be able to work autonomously to support people with peripheral nerve diseases, conducting telephone clinics and attending face to face MDT clinics.
• You will be able offer up to date and accurate knowledge both via telephone and face to face on a regular basis.
• You will be able to provide support and share knowledge on community support, genetics and living holistically with an inherited neuropathy.
• You will be trained in arranging and undertaking skin biopsies to assist with diagnosis.
• You will be expected to maintain professional relationships with national agencies to ensure that patients have access to the latest advice and care available.
• To support the wider CNMD specialist nursing team as appropriate and attend regular CNS update meetings.
Working for our organisation
University College London Hospitals NHS Foundation Trust (UCLH) is one of the most complex NHS trusts in the UK, serving a large and diverse population. We provide academically led acute and specialist services, to people from the local area, from throughout the United Kingdom and overseas. Our vision is to deliver top-quality patient care, excellent education, and world-class research.
We provide first-class acute and specialist services across eight sites:
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University College Hospital (incorporating the Elizabeth Garrett Anderson Wing)
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National Hospital for Neurology and Neurosurgery
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Royal National ENT and Eastman Dental Hospitals
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University College Hospital Grafton Way Building
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Royal London Hospital for Integrated Medicine
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University College Hospital Macmillan Cancer Centre
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The Hospital for Tropical Diseases
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University College Hospital at Westmoreland Street
We are dedicated to the diagnosis and treatment of many complex illnesses. UCLH specialises in women’s health and the treatment of cancer, infection, neurological, gastrointestinal and oral disease. It has world class support services including critical care, imaging, nuclear medicine and pathology.
We are committed to sustainability and have pledged to become a carbon net zero health service, embedding sustainable practice throughout UCLH. We have set an ambitious target of net zero for our direct emissions by 2031 and indirect emissions by 2040.
Detailed job description and main responsibilities
For the full Person Specification and more information regarding the main responsibilities of this role, please refer to the attached Job Description.
Come and be a part of the best NHS trust in England to work for, according to our staff*
*In the most recent NHS staff survey UCLH had the highest percentage of staff who said they would recommend us as a place to work, out of all general acute or acute/community NHS trusts in England – for the second year in a row.
UCLH top trust to work at in England – for the second year running! University College London Hospitals NHS Foundation Trust.
Once again, UCLH has received the highest score of all general acute and acute/community NHS trusts in England for staff that would recommend us as a place to work.
To discover more about what makes UCLH a great place to work, visit: Why Choose UCLH?
Person specification
Knowledge and Qualifications
Essential criteria
- Registered Nurse Part 1, 2 or relevant section of the register
- Relevant post-registration programme
- Teaching/Assessment programme
Desirable criteria
- Leadership development programme (HLP2)
- Management development programme (HLP2
Experience
Essential criteria
- Relevant post registration neurology experience in same specialty (HLP2), (FO)
Desirable criteria
- Completed/completing Masters Degree (HLP2) (FO)
- Previous experience in a specialist nursing role, looking after people with long term conditions
- Completed/completing Honours Degree in Nursing, midwifery, research or ethics (HLP1), (SO
Skills and Abilities
Essential criteria
- Up to date knowledge of medicines management and local guidelines
- evidence of good written oral and written communication
- Demonstrates knowledge of working with people with long-term conditions and potential implications
Desirable criteria
- Experience in undertaking virtual/telephone clinics
- Presentation skills
- Knowledge of neuromuscular diseases
- Knowledge of social care and out of hospital support
Communication
Essential criteria
- a. Demonstrates awareness of the importance of working in a multi-disciplinary team
- b. Communicates effectively verbally, in writing and in electronic formats
- c. Communicates with patients and carers in an empathetic manner
- d. Demonstrates understanding of good practice in Customer Care
- e. Presentation skills
Personal and People Development
Essential criteria
- Demonstrates evidence of professional development in line with KSF, maintains updated Portfolio
- Experience as a preceptor/facilitator/mentor
- Reflective in Practice
- Demonstrates evidence of ability to educate others
- Demonstrates up to date knowledge and expertise in the specialty
- Evidence of developing & leading nurse led clinics / services (HLP2)
- Evidence of ability to work collaboratively (HLP1) / autonomously (HLP2)
Desirable criteria
- Published articles / poster presentations
Responsibilities towards promoting Equality Diversity and Inclusion
Essential criteria
- Demonstratable understanding of the Equality, Diversity, and Inclusion and/or Knowledge of the NHS obligations under the Equality Act 2010 and the Public Sector Equality Duties
Specific Requirements
Essential criteria
- Flexible approach to shift patterns
- knowledge of key professional issues and NMC guidelines relating to professional practice
- Ability to manage and evaluate change.
- Up to date knowledge of speciality
Applicant requirements
You must have appropriate UK professional registration.
This post is subject to the Rehabilitation of Offenders Act 1974 (Exceptions) Order 1975 (Amendment) (England and Wales) Order 2020 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.
Documents to download
Further details / informal visits contact
- Name
- Laura Compton
- Job title
- Neuromuscular Lead Nurse
- Email address
- [email protected]
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